Steven face pic

In today’s post, Epilepsy Futures participant and blogger Steven Connelly discusses his thoughts about his ongoing well being, and the use of alert systems.

Steven refers to Epilepsy Connections Ayrshire based epilepsy support groups, which meet once a month and are facilitated by our Ayrshire & Arran Fieldworker, Jim Thompson.

All through 2015 my epilepsy was distressing and unpredictable, leaving me wounded and bed ridden for most of the year.

In addition, I had to give up my university course which was depressing for me, but it was just not possible to carry on.

During that period, my GP contacted the local Social Work department and they assessed my home, fitting suitable acquired aids and adaptations that help me to live a safe, normal independent life, free from danger.

At the time it had been suggested I use a security system, and I opted to use a commercially available one, rather than the one offered by the local council. I chose one in particular because I wanted something that was more stylish in appearance and not so obvious to the general public, looking very similar to an iwatch. It was called “Buddi Security System”

Regrettably, this cutting edge piece of kit undoubtedly wasn’t for me, as for no reason, the equipment kept corresponding with my emergency contacts.

Also, it would inactivate its self and wouldn’t connect without access to the internet, leaving me unimpressed and dissatisfied.

However, one month ago I was at one of my regular epilepsy support group meetings in Ayrshire and on the agenda for the evening was a presentation by a member of the smart team from East Ayrshire Council

She was there to tell us about what is accessible in regards to personal emergency response devices, for example the community alarm, and bed sensors and she explained the same system that I had previously tried using. I shared my own experience with her and the group, and the problems I had experienced with it, that had stopped me using it.

On Thursday last week, I attended the young persons group and our Ayrshire field worker Jim Thompson talked about this system again, so I decided to have a look at the information leaflet and detected a vast development in the service.

When I got home that evening, I did some more research and found that the system has been remodelled, while still keeping its contemporary, state of the art appearance, looking like a fit bit.

I couldn’t help myself and I rented it on a monthly basis from Friday, it landed on my door step the following day which is just breathtaking service.

The system itself seems to be absolutely outstanding and amazing; it works perfect, it is so ideal.

I accidentally pressed one of the buttons on it and the response myself and my friend received was fast, caring and effective, such a substantial improvement from before.

Being part of Epilepsy Futures has helped me become more conscious and aware that one of my emergency contacts  is my friend from Glasgow. If anything at all was to happen to myself he would be able to contact Epilepsy Connections explaining the reason for my absence as-well as keeping me safe.

Steven Connelly