Steven Connelly outside the Scottish Parliament entrance
On Thursday 26th April, Steven attended the latest Cross party Group on Epilepsy, meeting in the Scottish Parliament at Holyrood.
He was there with our training and development manager Sam Whitmore and Mary Antczak, a fellow member of our People’s Forum.
In this post he shares his experience of his first visit to the Parliament.
This week I represented Epilepsy Connections as a member of the People’s Froum, at the April meeting of the Cross Party Epilepsy Group at the Scottish Parliament.
I was supported by Sam Whitmore, who accompanied me to Parliament, and this trip has further increased my confidence. I had no idea where the Parliament buildings are in Edinburgh, or how to find them. However, I feel confident I could now make the journey there myself, if I attend any future meetings.
The purpose of the Cross Party Group is to address the needs of all of us who are living in Scotland with Epilepsy. It brings together a huge number of individuals who have a wealth of knowledge on this subject and these meetings are extremely necessary to let MSPs know that Epilepsy is a disease that is life threatening and debilitating to a person’s life. They raise awareness of the disease, to help deal with the stigma and lack of epilepsy awareness that we experience in day to day life.
I found the group to be fascinating, and really enjoyed the discussion of the use of cannabinoids in the treatment of epilepsy.
As a thirty four year old man living with uncontrolled epilepsy, the nature and content of this topic is unquestionably one I feel strongly about, and which is of great relevance to me.
I was honoured to have been able to represent Epilepsy Connections in such an luxurious and extravagant building and important event, and I was delighted to catch up with Mary (Epilepsy Futures Peer Mentor) as it’s always a pleasure to see her.
A successful day.