This week was session three in the online “Epilepsy and you” course, created by Epilepsy Action.
The topic covered how epilepsy affects you as an individual, what might impact on seizure management, including the importance of regularly taking your Anti Epileptic Drugs (AEDs) and some of the risk factors which can contribute to Sudden Death in Epilepsy (SUDEP).
These topics caused a lot of discussion within the group, and Steven Connelly gives his personal reflection below.
This week our “Epilepsy and You” online course progressed on to the topic of seizure management.
This really was a continuation on from what we learned last time, about different types of epileptic seizures and revisited detailed information about our very own seizure types, and what happens before, during and after a seizure.
I found this weeks topics extremely both informative and eye opening, especially the section on epilepsy related deaths and SUDEP.
It’s worrying to know that thinking over 1,000 people with the same condition as myself have suffered an unexpected death due to their epilepsy.
I find this terrifying but feel that the education we have been provided with during Futures is helpful as it contains lots of valuable information about epilepsy and SUDEP, and ways to reduce the risk, one of which is to use personal/house/bed alarms to keep you safe.
I had never really appreciated the full extent of what could happen as a result of my condition until Epilepsy Futures, now I am motivated and inspired to raise awareness about SUDEP, as it’s an issue and subject that needs to be discussed more.
#epilepsy #SUDEP #Managingrisks