Epilepsy Connections

Useful Links

• EPILEPSY ACTION
  Provides support, literature and information to people living with epilepsy. Also offers training, supports research and campaigns for change.
• NATIONAL CENTRE FOR YOUNG PEOPLE WITH EPILEPSY (NCYPE)
  National centre providing education, multidisciplinary assessment, and residential care for children/young people with epilepsy. Also provides information and training.
• NATIONAL SOCIETY FOR EPILEPSY (NSE)
  Medical research (with institute of Neurology), assessment and residential care (adults), epilepsy information and training for lay and professional audiences.
• QUARRIERS
  Residential assessment, respite and residential support for people with complex epilepsy.
• EPILEPSY WEST LOTHIAN
  Support and information for people with epilepsy in West Lothian. Provides training and day care facilities.
  email - enquiries@epilepsywestlothian.co.uk
• EPILEPSY RESEARCH FOUNDATION
  Founded in 1991 with the aim of funding research into the causes, treatment and prevention of epilepsy.
• EPILEPSY SCOTLAND
  Epilepsy Scotland directly involves people with epilepsy in campaigning for better services.
• International Bureau of Epilepsy
  International umbrella organisation of health professionals and voluntary organisations with an interest in medical and social aspects of epilepsy.
• INTERNATIONAL LEAGUE AGAINST EPILEPSY
  International organisation of health professionals with an interest in epilepsy.
• Scotland's Health on the Web
  Online health information.
• Contact A Family
  UK charity providing support and advice for families of children with disabilities.
• OUCH
  Ouch! Is the BBC's website for and by people with a disability.
• Disability Information Greater Glasgow
  Information and support network for adults living with long term conditions
• Enlighten – Tackling Epilepsy
  Provides information and support to people affected by epilepsy in Edinburgh and West Lothian.
• Epilepsy Bereaved
  The leading voluntary organisation in the UK and internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.
• Youthhealthtalk.org - Young People With Epilepsy
  A Forum containing real life experiences of young people with epilepsy covering topics such as impact of epilepsy on relationships, ability to get a job, dealing with AEDs and impact on social life.